On 26 June 2015 | Thoughts all of a Sudden | I am in my Room

On 26 June 2015 | Thoughts all of a Sudden

I closed all the windows to avoid the rays of the sunlight coming into my room. Ignoring the voice of my mamma who was calling me in the kitchen to cook lunch for everyone, I closed the door as well. All I wanted was to stay alone. I covered my face with an A4 sized paper and stood up in front of the mirror, trying to be brave enough to face the mirror. Tears in my eyes are making the paper wet, my hands are shaking but my hands are not down yet.

On 26 June 2015 | I am in My Room

In 2010 this chronic illness ‘Lupus’ fell in love with me. Today, 26 June 2016, it has been 6 years of relationship. I am always limited for making decisions for anything. I have dark skin, a puffy face, thin legs, and a big stomach. I don’t fit in a one-piece or in jeans and crop t-shirts. My friends put rose on their cheeks to make them extra glowing. But for me, I have my very own natural butterfly rashes which don’t let me put on make-up and an extra rose.

Do I feel lucky about having this extra natural beauty or hate that I look different? I have to take drugs every day. I am very dependent on others. See, it keeps me under its control all the time. I know it is never going to let me go. I have to maintain it for my whole life instead. I don’t have the strength to accept myself.

On 26 June 2015 | Thoughts all of a Sudden | I am in my Room
On 26 June 2015 | I am Learning to Live | Updated Picture of me from 2019

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I am Deepa Bohara from Surkhet- a mid-western part of Nepal. I was born on 1998-04-08. I’ve been living with a chronic illness called Systemic Lupus Erythematosus (SLE) for 10 years now. Living with Lupus was never easy for me but I found my internal voice in words. In all that time, I’ve discovered Spoken Word poetry, been one of the winners of “Slamming in Surkhet” in 2013, and participated in the National Poetry Slam 2016. I chose this platform to express myself, share my journey and give a voice to my words. I believe that my feelings are living things and I should never let them die. I’ve become a member of Word Warriors- a Spoken Word Poetry collective in Nepal. I have travelled to more than 8 districts, performing poetry and working with hundreds of students spreading my love for poetry. I am a writer, spoken word poet and a bachelor student of Arts at Patan Multiple Campus, Lalitpur, Nepal. Currently, I have established my own business in my hometown. I am a CEO & Founder of CC Group of Company Pvt. Ltd. an IT company located at Birendranagar-4, Surkhet, Nepal.

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